Living with hidradenitis suppurativa

Living with HS can be draining, physically painful, and emotionally challenging. It can cause embarrassment and frustration, and affect social life, relationships and sleep, potentially leading to social isolation, depression, and poor self-care¹.
 

HS might leave people:
 

• Feeling left out and lacking in self-confidence
• Missing out on social activities
• Depressed because of the appearance of their skin
• Concerned about their sexual health
• Struggling to manage daily responsibilities at home or work
• Unable to work, which can affect their finances

What can patients do about HS symptoms?
 

• Wear loose-fitting clothes This helps reduce sweat and keeps moisture from causing further irritation and pain from HS bumps and sores.
• Quit smoking, if relevant
• Lose weight, if relevant
   

• Avoid squeezing bumps and sores.

• Avoid using loofahs, washcloths, or other rough materials on areas affected by HS. These can irritate the skin further.
• Avoid shaving or using hair removal cream in areas affected by HS.
• Keep a journal to track HS This can help show the impact of HS, and may be helpful during medical consultations.