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The nodules and abscesses associated with HS often come back more than once in the same areas of the body within a 6-month period.
They may keep coming back for years after the first outbreak. Over time, the abscesses may leave scars. HS symptoms may look different on darker skin.
On average, it can take 7-10 years for patients to be diagnosed with HS1,2. Patients may see more than three different doctors and receive at least three incorrect diagnoses before HS symptoms are recognized and correctly diagnosed2.
Delayed diagnosis increases the severity of HS and is linked to more need for surgical intervention, more associated diseases (comorbidities), and reduced quality of life2. It is important for all healthcare professionals to recognize the symptoms of HS, and to refer patients promptly to a dermatologist who is experienced with diagnosing and treating HS. Healthcare professionals may also need to work together with experts in HS, particularly when patients have common conditions that occur alongside HS.
The symptoms of HS can look like other conditions that are more well-known, such as acne, ingrown hairs, infection of the hair follicles, or some skin infections3. HS in the perianal or genital regions may also resemble some forms of Crohn’s disease3.
People with HS may have one or more other health conditions that often occur at the same time as HS. These can include:
HS can be classified into three stages based on symptom severity. These are sometimes called Hurley stages1.
Usually shows up as one or multiple nodules or abscesses, without scarring or tunnel formation.
Multiple nodules and/or abscesses, with limited tunnels and/or scarring.
Multiple, widespread tunnels, abscesses, and scarring.
References
Napolitano M, Megna M, Timoshchuk EA, Patruno C, Balato N, Fabbrocini G, et al. Hidradenitis suppurativa: from pathogenesis to diagnosis and Clin Cosmet Investig Dermatol. 2017;10:105-15.
Kokolakis G, Wolk K, Schneider-Burrus S, Kalus S, Barbus S, Gomis-Kleindienst S, et al. Delayed Diagnosis of Hidradenitis Suppurativa and Its Effect on Patients and Healthcare Dermatology. 2020;236(5):421-30.
Saunte DML, Jemec Hidradenitis Suppurativa: Advances in Diagnosis and Treatment. Jama. 2017;318(20):2019-32.
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