Polycythaemia vera (PV)
What PV can mean for your patients’ quality of life and independence
Fatigue
Fatigue is one of the most bothersome PV symptoms for many patients and may interfere with their daily life.1 Play the video below to discover one patient’s experience of PV-related fatigue.
VIDEO
Advice
Living with PV can feel isolating for patients. Play the video below to hear one patient’s advice to others living with PV.
VIDEO
The global MPN Landmark survey recruited 223 patients living with PV across different continents.1 The most common symptoms experienced in the past 12 months were fatigue or tiredness and pruritus.1
of patients with PV experienced a reduction in quality of life due to MPN symptoms1
Fatigue or tiredness and weakness were reported as the most severe symptoms, with 84% of patients with PV saying fatigue is the symptom they would most like resolved.1
PV impacts patients’ overall ability to work1
Leukaemia Care, MPN Voice, Macmillan and Blood Cancer UK are examples of patient advocacy groups (PAGs).
They represent patients and carers, providing them with credible information as well as support.
Macmillan Cancer Support helps patients navigate the emotional, practical, physical and financial impact cancer can have on their lives. They help guide patients through every stage of their cancer journey and do whatever it takes to support people living with cancer. They also host an online community so that patients can talk to other people going through a similar experience.
Find out more about Macmillan Cancer Support
https://www.macmillan.org.uk/
Leukaemia Care is dedicated to ensuring that everyone affected by blood cancer receives the best possible diagnosis, information, advice, treatment and support. They provide information, advice and support to improve the lives of people affected by leukaemia, MDS and MPN.
Find out more about Leukaemia Care
https://www.leukaemiacare.org.uk/
Blood Cancer UK’s vision is to beat blood cancer by funding research and supporting those affected. They provide support and information for people living with any kind of blood cancer.
Find out more about Blood Cancer UK
https://bloodcancer.org.uk/
MPN Voice provides clear and accurate information and emotional support to anyone living with an MPN, as well as their friends and families. They offer patient forums and peer-to-peer support so that patients know they are not alone and can talk to someone else living with an MPN.
Find out more about MPN Voice
https://www.mpnvoice.org.uk/
Understanding MPNs
A guide to help patients and caregivers understand their MPN and how it may affect them.
Explore all of our other HCP and patient resources
Hydroxyurea is synonymous with/refers to hydroxycarbamide throughout.
HU, hydroxyurea; MDS, myelodysplastic syndromes; MPN, myeloproliferative neoplasm; PAG, patient advocacy group; PV, polycythaemia vera.
Reference
Harrison CN, et al. Ann Hematol. 2017;96:1653–1665.
UK | December 2024 | FA-11213881
Adverse events should be reported. Reporting forms and information can be found at www.mhra.gov.uk/yellowcard. Adverse events should also be reported to Novartis online through the pharmacovigilance intake (PVI) tool at www.novartis.com/report, or alternatively email [email protected] or call 01276 698370.